The 20 Best Megalencephalic Leukoencephalopathy with Subcortical Cysts Doctors Near Me in Grand Rapids, MI

Find the Top Megalencephalic Leukoencephalopathy with Subcortical Cysts Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 11 doctor with experience in Megalencephalic Leukoencephalopathy with Subcortical Cysts near Grand Rapids, MI. Of these, 8 are Experienced and 3 are Advanced.

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11 providers found
    Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Pediatrics | Medical Genetics
    Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Pediatrics | Medical Genetics

    Corewell Health Grand Rapids Hospitals Biochemical Genetics - 25 Michigan St NE

    25 Michigan Street Northeast, Suite 2100, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    8+ years
    Languages Spoken:
    English
    Offers Telehealth

    Jessica Priestley is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 8 years. Dr. Priestley is rated as an Advanced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Fabry Disease, Biotinidase Deficiency, Ornithine Transcarbamylase Deficiency, and Multiple Sulfatase Deficiency. Dr. Priestley is board certified in American Board Of Medical Genetics And Genomics, American Board Of Medical Genetics And Genomics, and American Board Of Pediatrics.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Pediatric Neurology
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    32+ years
    Languages Spoken:
    English
    Accepting New Patients

    Steven Deroos is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 32 years. Dr. Deroos is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, and Dandy-Walker Syndrome. Dr. Deroos is board certified in American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 2005. Dr. Deroos is currently accepting new patients.

    Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

    Renal Associates Of West Michigan - Grand Rapids

    330 East Beltline Avenue Northeast, Suite 100, 
    Grand Rapids, MI 
     (3.4 miles away)
    Experience:
    32+ years
    Languages Spoken:
    English
    Accepting New Patients

    James Visser is a Nephrologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 32 years. Dr. Visser is rated as an Advanced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses End-Stage Renal Disease (ESRD), Chronic Kidney Disease, Acute Kidney Failure, and IgA Nephropathy. Dr. Visser is board certified in American Board Of Internal Medicine. Dr. Visser is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

    Renal Associates Of West Michigan - Grand Rapids

    330 East Beltline Avenue Northeast, Suite 100, 
    Grand Rapids, MI 
     (3.4 miles away)
    Experience:
    16+ years
    Languages Spoken:
    English
    Accepting New Patients

    Bonita Mohamed is a Nephrologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 16 years. Dr. Mohamed is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses End-Stage Renal Disease (ESRD), Chronic Kidney Disease, Acute Kidney Failure, and Necrosis. Dr. Mohamed is board certified in American Board Of Internal Medicine and American Board Of Internal Medicine. Dr. Mohamed is currently accepting new patients.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

    Renal Associates Of West Michigan - Grand Rapids

    330 East Beltline Avenue Northeast, Suite 100, 
    Grand Rapids, MI 
     (3.4 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Paul Delyria is a Nephrologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 17 years. Dr. Delyria is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. He is also highly rated in 40 other conditions, according to our data. His clinical expertise encompasses End-Stage Renal Disease (ESRD), Acute Kidney Failure, Chronic Kidney Disease, and Acute Tubular Necrosis. Dr. Delyria is board certified in American Board Of Internal Medicine. Dr. Delyria is currently accepting new patients.

    Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Medical Genetics | Pediatrics
    Advanced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Medical Genetics | Pediatrics
    35 Michigan St NE Ste 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Stacie Adams is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Grand Rapids, Michigan. Dr. Adams is rated as an Advanced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Propionic Acidemia, Classic Galactosemia, Biotinidase Deficiency, and Galactose Epimerase Deficiency. Dr. Adams is currently accepting new patients.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

    Corewell Health Advanced Primary Care - Alpine

    2332 Alpine Avenue Northwest, 
    Grand Rapids, MI 
     (6.0 miles away)
    Experience:
    27+ years
    Languages Spoken:
    English
    Accepting New Patients

    Christopher Barnes is a primary care provider, practicing in Geriatrics in Grand Rapids, Michigan. He has been practicing medicine for over 27 years. Dr. Barnes is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Alexander Disease, Canavan Disease, Farber Lipogranulomatosis, and Pelizaeus-Merzbacher Disease. Dr. Barnes is board certified in American Board Of Family Medicine. Dr. Barnes is currently accepting new patients.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Pediatric Nephrology
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Pediatric Nephrology

    Helen Devos Children's Hospital Nephrology-Grand Rapids

    35 Michigan St NE Ste 5201, 
    Grand Rapids, MI 
     (0.3 miles away)
    Languages Spoken:
    English

    Yi Cai is a Pediatric Nephrologist practicing medicine in Grand Rapids, Michigan. Dr. Cai is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Nephrotic Syndrome, Feingold Syndrome, Calciphylaxis, and Nephrocalcinosis.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Neurology
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Neurology

    Trinity Health Medical Group Alzheimer's & Memory Clinic-Grand Rapids Campus

    220 Cherry St SE, 
    Grand Rapids, MI 
     (0.9 miles away)
    Languages Spoken:
    English

    Min Zhu is a Neurologist practicing medicine in Grand Rapids, Michigan. Dr. Zhu is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Limb-Girdle Muscular Dystrophy Type 1B, Limb-Girdle Muscular Dystrophy Type 2C, Limb-Girdle Muscular Dystrophy Type 1A, and Dystrophinopathy.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts

    Trinity Health Medical Group Alzheimer's & Memory Clinic-Grand Rapids Campus

    220 Cherry St SE, 
    Grand Rapids, MI 
     (0.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Melanie Taylor is a Neurologist practicing medicine in Grand Rapids, Michigan. Dr. Taylor is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. She is also highly rated in 57 other conditions, according to our data. Her clinical expertise encompasses Lambert-Eaton Syndrome, Spinal Muscular Atrophy (SMA), Peripheral Neuropathy, and Myasthenia Gravis.

    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine
    Experienced in Megalencephalic Leukoencephalopathy with Subcortical Cysts
    Family Medicine

    Corewell Health Family Medicine, Internal Medicine And Pediatrics - Rivertown

    3185 Macatawa Drive Southwest, Suite A, 
    Grandville, MI 
     (8.0 miles away)
    Experience:
    9+ years
    Languages Spoken:
    English
    Offers Telehealth

    Carly Quinn is a primary care provider, practicing in Family Medicine in Grandville, Michigan. She has been practicing medicine for over 9 years. Dr. Quinn is rated as an Experienced provider by MediFind in the treatment of Megalencephalic Leukoencephalopathy with Subcortical Cysts. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Generalized Anxiety Disorder (GAD), Hyperhidrosis, Seasonal Affective Disorder (SAD), and Obesity in Children. Dr. Quinn is board certified in American Board Of Family Medicine.

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    Last Updated: 04/28/2026

    What is the definition of Megalencephalic Leukoencephalopathy with Subcortical Cysts?

    Megalencephalic leukoencephalopathy with subcortical cysts (MLC) is a condition that affects brain development and function. Individuals with this condition have an enlarged brain (megalencephaly) and an abnormality of the white matter in the brain (leukoencephalopathy). White matter consists of nerve fibers covered by a fatty substance called myelin that promotes the rapid transmission of nerve impulses. In MLC, the myelin is swollen and contains numerous fluid-filled pockets (vacuoles). Over time, the swelling decreases and the myelin begins to waste away (atrophy). Leukoencephalopathy can lead to abnormal muscle tensing (spasticity), difficulty coordinating movements (ataxia), cysts in the brain (subcortical cysts), abnormal muscle tone (dystonia), swallowing difficulties, mild to moderate intellectual disabilities, speech difficulties, seizures, and difficulties walking. There are three types of MLC, which are distinguished by their signs and symptoms and genetic cause. Type 1 is caused by genetic changes in the MLC1 gene. Types 2A and 2B are caused by genetic changes in the HEPACAM gene. MLC types 1 and 2A are inherited in an autosomal recessive manner, while type 2B is inherited in an autosomal dominant manner. In some cases of MLC, the cause is unknown.

    When should I see a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Grand Rapids, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Grand Rapids, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Megalencephalic Leukoencephalopathy with Subcortical Cysts doctors near Grand Rapids, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Megalencephalic Leukoencephalopathy with Subcortical Cysts doctors near Grand Rapids, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Grand Rapids, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor search results page. 

    Why is it important to get a second opinion from a different Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor near Grand Rapids, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Megalencephalic Leukoencephalopathy with Subcortical Cysts doctors near Grand Rapids, MI?

    Look for the filter feature on the left side of the Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor that offers video calls?

    Look for the filter feature on the left-side of the Megalencephalic Leukoencephalopathy with Subcortical Cysts doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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